Addressing the autism assessment and support crisis

For a country that works for all children and young people.

Our 2025 #ChildrenFirst campaign provides a series of toolkits designed to support schools, child health services and local authorities to implement expert recommendations and improve outcomes for all children.

In 2024, Child of the North and Centre for Young Lives initiated a major campaign calling on the government to build a country that works for all children and young people. This campaign delivered a series of reports and webinars on twelve key topics identified by Northern child health leaders as major issues of concern, including poverty, special educational needs, school attendance and mental health. These reports provide rigorous research and pragmatic, evidence-based recommendations.

First published in February 2024, the first report, An evidence-based plan for addressing the autism assessment and support crisis revealed a crisis in children’s autism assessment.

An update Autism assessment and support update: The crisis is worsening released in September 2025, marks the launch of a twelve-week #ChildrenFirst campaign, drawing attention back to the issues highlighted in the series, and providing a series of toolkits designed to support schools, child health services and local authorities to implement the report recommendations and improve outcomes for all children.

We need the government, policymakers, practitioners, academics, communities and young people to work together to build a country that works for all children and young people.

Support our 2025 #ChildrenFirst campaign, by sharing the resources below:

Autism assessment and support update: The crisis is worsening

Published September 2025 

The first in our update series as part of our #ChildrenFirst campaign reveals that children in the North of England are waiting up to three years longer than those in the south for an autism diagnosis.

Download the update

 

An evidence-based plan for addressing the autism assessment and support crisis

Published February 2024, as the first report in our twelve-part series

Our analysis reveals an autism assessment and support crisis, with tens of thousands of children waiting months and years for help after demand rockets by over 300% since Covid.

  • The report reveals more than one in four parents have waited over three years to receive support for their autistic child
  • Just one in ten children receive an appointment within the recommended 13 week waiting period
  • The report calls for more assessments to take place in nurseries and schools and more support for autistic children before diagnosis, and for new formal local partnerships between schools, health, voluntary services, and universities

Download the report

 

How To Guides

A series of toolkits have been developed to help practitioners and organisations take practical steps to improve the health and wellbeing of the children and young people with whom they work directly. Building on the findings of the Child of the North reports, these ‘How To’ guides provide evidence and suggestions about how all parties can work together.

Download

Tackling the autism assessment and support crisis – Guide for education colleagues

 

Download

Tackling the autism assessment and support crisis – Guide for child health colleagues

 

Webinar

In February 2024 a number of the report’s authors came together to discuss their findings and to answer questions from the online audience, you can view the YouTube recording below.

 

Professor Mark Mon-Williams, Chair in Cognitive Psychology at the University of Leeds, said:

“Autistic children and their families are being failed by systems that are not fit for purpose. This report provides hope with its evidence-based recommendations for how the system can be changed to build a better UK for children and young people. We now have a roadmap and we need to act at pace to ensure these recommendations are implemented.”

Anne Longfield, Executive Chair of the Centre for Young Lives, said:

“The number of autistic children seeking support is at a record high and the number waiting for an assessment has rocketed since Covid. The autism assessment crisis is leaving thousands of children without the support they need and parents having to battle their way through a nightmare process that can take years to resolve.

“The evidence shows the need to move to a system of support that responds to the needs of autistic children, rather than waiting for diagnosis before any help appears. The education sector and health services should be working together, sharing data and information, and building local partnerships that can transform the support autistic children receive.”

 

Sign up for updates on our 2024/25 Campaign

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Previous Reports

Previous reports can be found archived on our Child of the North Reports page.

Contact Us

Stephen Parkinson, Research Partnership Manager

via email

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